The reason we are here at Miami Children's Hospital is to capture good data about Allie's seizures, to determine what kind of seizures they are, and to locate the part of the brain the seizures originate.
Monday, our first day in the hospital, we started the day with a thorough MRI. Allie was sedated for this three hour procedure. She had these specific MRI procedures done:
Allie is having tonic seizures. Her seizures originate in her brain's right frontal lobe. Doctors arrived at this conclusion with data gathered from the MRI as well as analysis of video EEG information captured during two strong seizures Tuesday morning.
Today (Wednesday, day three in the hospital), there has been discussion of another MRI. Doc's drastically reduced Allie's seizure meds to spur more seizures. This also deprives Allie - and the Charming and Beautiful Susan and me - of normal sleep which also causes seizure activity to spike.
A common discovery of an MRI in people with brain damage is the affected regions of the brain are shriveled. This never surprises doctors. Damaged areas of the brain are not used and, therefore, do not develop. They shrivel.
Docs confirmed that the damaged areas of Allie's brain have shriveled.
There's a finality to this report that makes me profoundly sad.