We thought our trip to San Francisco was going to be harrowing. Getting our little princess to cooperate and ride peacefully in the car seat is a tall order. As Ali has become more alert, she has learned to use the ancient child-parent communication tool known as the temper tantrum. She threw two on the way to San Francisco and two on the back north to Eureka. The first one on the way home lasted from Van Ness Blvd. in downtown San Francisco, across the Golden Gate Bridge, through Marin County all the way up into Santa Rosa. That's quite a bit of beautiful Northern California countryside for a loving married couple to experience with a baby shrieking in their ears.
But the worst baby crying I've ever seen is when Ali had her g-tube (see below) snatched out by the Doc.That was quite an undertaking. Ali started crying as soon as the Doc started probing around the g-tube point of insertion in her belly. The charming and beautiful Susan performed a disappearing act at that point. She's not a big fan of baby pain or the sight of baby blood.
In that little doctor's office room were Ali on the the table, the Doc, Nurse Vance, and me being completely useless and in the way. But they say I had to stay (something was muttered about a parental present and hospital liability). Nurse Vance held held Ali's legs, I held her hands and talked soothingly to her. With all those hands holding and probing and me with the gentle voice, Ali got wise to the fact that something really painful was about to happen so she freaked. The Doc cut the tube spraying the contents of Ali's stomach all over the room, wrapped part of the tube around his fingers and clenched his hand into a fist, waited for the hyper-ventilating and screaming Ali to take a breath, and yanked. I'm pretty sure Ali's face turned purple at that point. I don't do well with the sight of baby blood either, but what are ya' gonna do?
The Doc and Nurse Vance were a blur as they worked to insert Ali's new feeding valve, the Mic-key. They were done in about thirty seconds and Ali was in my arms in forty. We went down to radiology from there to make sure the Mic-key was installed in her stomach properly. That's when the charming and beautiful Susan, like a magician's assistance, re-appeared and gave Ali the hugs and comfort she was looking for.
The x-rays showed that everything was working properly and we were on to our next appointment.
That Mic-key tube has changed the way we handle Ali. For two months, Ali has had a catheter hanging out of her abdomen. Now she has this flat little button. It's so cool. It doesn't get in the way and Ali is not nearly as agitated by this thing as she was by the g-tube. She can be placed on her belly, she can wear different clothes, we can put her in one of those baby carrying pouches, and, best of all, she can be placed on her belly to work on crawling in physical therapy.
Now that Ali is drinking a bottle, she will only be fed directly to her g.i. tract at night, when we give her medicine, and in case of an emergency.
It's nice to see things start to get normal and un-harrowing with her.